Resources

Data Management and Dissemination

Biobanks in the era of personalized medicine: objectives, challenges, and innovation (Website)

Uploaded 18 Sep 2017

Biobanks are an international phenomenon because any single country, state, or society at the moment is not able to cover all issues involving the whole biobank problematic. Biobanks have an enormous innovative potential in the whole process of biomedical research in the twenty-first century.

Data Management and Dissemination

A Review of International Biobanks and Networks: Success Factors and Key Benchmarks (Website)

Uploaded 18 Sep 2017

Biobanks and biobanking networks are involved in varying degrees in the collection, processing, storage, and dissemination of biological specimens. This review outlines the approaches that 16 of the largest biobanks and biobanking networks in Europe, North America, Australia, and Asia have taken to collecting and distributing human research specimens and managing scientific initiatives while covering operating costs.

Data Management and Dissemination

Surveillance, Epidemiology and End Results (SEER) Glossary (Video)

Uploaded 18 Sep 2017

This web page provides a glossary of terms. 

Data Management and Dissemination

Australia's capacity to respond to an infectious disease outbreak (Video)

Uploaded 18 Sep 2017

The aim of this paper is to raise issues for discussion and highlight both the positive and negative aspects of Australia s current emergency health response arrangements. Therefore, given the vast and complex nature of the national health system, it is not the intention of this paper to provide much more than a basic analysis of the issues or to offer recommendations.

Data Management and Dissemination

Basics on Australian and New Zealand civil registration of births, deaths & marriages (Video)

Uploaded 18 Sep 2017

Civil registration in Australia and New Zealand did not commence until some time after Great Britain. However, before that time many baptisms, christenings, marriages and burials were recorded in Church registers. Many of these registers have been incorporated into the indexes now available, but the coverage is not complete.

Data Management and Dissemination

The Autism Biobank Research Project (Video)

Uploaded 18 Sep 2017

Professor Cheryl Dissanayake introduces OTARC’s significant research project, The Autism Biobank. This historic data collection project is funded by the Autism Cooperative Research Centre (Autism CRC).

Data Management and Dissemination

Medical innovations: Biobank (Video)

Uploaded 18 Sep 2017

When it comes to doing epidemiological studies, numbers matter. We find out about the UK's biobank - a project to collect information and samples from 500,000 volunteers, which should help scientists look for links between lifestyle and health.

Data Management and Dissemination

World Health Organisation International Agency for Research on Cancer (IARC). Research sections: cancer surveillance (Website)

Uploaded 18 Sep 2017

This resource is to complement your learning, and introduce you to other perspectives on the topics under discussion.

The key focus of the Section of Cancer Surveillance (CSU) is the systematic and ongoing pursuit of global cancer data and statistics for cancer control action, in keeping with one of the primary aims of IARC — to describe and elucidate cancer occurrence worldwide. The Section coordinates the collection, analysis, interpretation, and dissemination of indicators that capture the changing magnitude and profile of the disease by means of three essential and complementary areas of activity.

Data Management and Dissemination

A comprehensive review of cancer-related biobanks in New South Wales

Uploaded 18 Sep 2017

This resource is to complement your learning, and introduce you to other perspectives on the topics under discussion.

This publication, A comprehensive review of cancer-related biobanks in NSW, provides a snapshot of tumour tissue banking activity across the State, identifying and mapping the ‘biobanks’ used for cancer research across the 12 geographic research hubs in NSW. 

Data Management and Dissemination

Quality and quality control

Uploaded 18 Sep 2017

This resource is to complement your learning, and introduce you to other perspectives on the topics under discussion.