Public Population Project in Genomics and Society (P3G) (Website)
The Public Population Project in Genomics and Society (P³G) is an international not-for-profit consortium dedicated to the development and management of multi-disciplinary policy infrastructures and research consortia. Through its tools and services, P³G helps the international research community prepare and propose more effective health care strategies aimed at disease prevention, tailoring treatments, and, promoting the health of individuals, families and communities.
NHMRC: Biobanks information paper
This Information Paper draws on the international and Australian literature to discuss best practice in biobanks across six broad areas: establishment (including discontinuation); consent; data management; governance; access; and commercialisation and benefit sharing.
Guidelines for the Ethical Use of Digital Data in Human Research (Website)
Through the Carlton Connect Initiatives Fund (CCIF), the Centre for Epidemiology and Biostatistics at the Melbourne School of Population and Global Health developed the Guidelines for the Ethical Use of Digital Data in Human Research.
The International Council for Science (ICSU) (Website)
The International Council for Science (ICSU) is an international non-governmental organization devoted to international cooperation in the advancement of science. Its members are national scientific bodies and international scientific unions. TWAS is a Scientific Associate of ICSU.
Guidelines for the ethical use of digital data in human research
The guidelines presented here have been developed to assist researchers who are conducting, and ethics committee members who are assessing, research involving digital data.
Good laboratory practice (GLP). Guidelines for the archiving of electronic raw data in a GLP environment
The aim of this document is to provide guidance on the GLP complaint archiving of electronic raw data.
ICGC cancer genome projects
ICGC Goal: To obtain a comprehensive description of genomic, transcriptomic and epigenomic changes in 50 different tumour types and/or subtypes which are of clinical and societal importance across the globe.
Genetic testing, privacy and discrimination
The concept of "genetic discrimination" only recently entered our vocabulary. But the problem is well documented. Indeed, the Council for Responsible Genetics was the first organization to compile documented cases of genetic discrimination, laying the intellectual groundwork for future legislation.
Australian Autism Biobank study
The aim of the Australian Autism Biobank is to collect detailed information on Australian children with autism and their families. By understanding how the many genes and gene combinations may result in different types of autism, we aim to learn much more about why autism occurs.
Genetics Home Reference "Help me understand genetics
An introduction to fundamental topics related to human genetics, including illustrations and basic explanations of genetics concepts.