Resources

Other Groups and Associations

Good laboratory practice (GLP). Guidelines for the archiving of electronic raw data in a GLP environment

Uploaded 01 Nov 2017

The aim of this document is to provide guidance on the GLP complaint archiving of electronic raw data.

Other Groups and Associations

ICGC cancer genome projects

Uploaded 31 Oct 2017

ICGC Goal: To obtain a comprehensivedescription of genomic, transcriptomic and epigenomic changes in 50 different tumor types and/or subtypes which are of clinical and societal importance across the globe.

Other Groups and Associations

Genetic testing, privacy and discrimination

Uploaded 31 Oct 2017

The concept of "genetic discrimination" only recently entered our vocabulary. But the problem is well documented. Indeed, the Council for Responsible Genetics was the first organization to compile documented cases of genetic discrimination, laying the intellectual groundwork for future legislation.  

Other Groups and Associations

Australian Autism Biobank study

Uploaded 31 Oct 2017

The aim of the Australian Autism Biobank is to collect detailed information on Australian children with autism and their families. By understanding how the many genes and gene combinations may result in different types of autism, we aim to learn much more about why autism occurs.

Other Groups and Associations

Genetics Home Reference "Help me understand genetics

Uploaded 31 Oct 2017

An introduction to fundamental topics related to human genetics, including illustrations and basic explanations of genetics concepts.

Other Groups and Associations

National Institute of Health (NIH) Genetics Home Reference

Uploaded 31 Oct 2017

Genetics Home Reference provides consumer-friendly information about the effects of genetic variation on human health.

Other Groups and Associations

Queensland Health: Perinatal Data Collection

Uploaded 30 Oct 2017

The Perinatal Data Collection (PDC) collects information on all births in Queensland. The collection provides a basic source of information for research into obstetric and neonatal care and assists with the planning of Queensland's health services and the monitoring of neonatal morbidity and congenital anomalies.

Other Groups and Associations

Guidelines for the ethical use of digital data in human research

Uploaded 30 Oct 2017

The guidelines presented here have been developed to assist researchers who are conducting, and ethics committee members who are assessing, research involving digital data. 

Other Groups and Associations

E-Health Strategy for NSW

Uploaded 30 Oct 2017

The eHealth Strategy for NSW Health 2016–2026 has been developed to guide NSW to deliver world‑class, eHealth‑enabled healthcare services across the State over the next decade.

Other Groups and Associations

Defining the Role of Authors and Contributors (Website)

Uploaded 25 Oct 2017

The ICMJE has developed criteria for authorship that can be used by all journals, including those that distinguish authors from other contributors.