Resources

Other Groups and Associations

Public Population Project in Genomics and Society (P3G) (Website)

Uploaded 22 Jan 2019

The Public Population Project in Genomics and Society (P³G) is an international not-for-profit consortium dedicated to the development and management of multi-disciplinary policy infrastructures and research consortia. Through its tools and services, P³G helps the international research community prepare and propose more effective health care strategies aimed at disease prevention, tailoring treatments, and, promoting the health of individuals, families and communities.

Other Groups and Associations

NHMRC: Biobanks information paper

Uploaded 22 Jan 2019

This Information Paper draws on the international and Australian literature to discuss best practice in biobanks across six broad areas: establishment (including discontinuation); consent; data management; governance; access; and commercialisation and benefit sharing. 

Other Groups and Associations

Guidelines for the Ethical Use of Digital Data in Human Research (Website)

Uploaded 22 Jan 2019

Through the Carlton Connect Initiatives Fund (CCIF), the Centre for Epidemiology and Biostatistics at the Melbourne School of Population and Global Health developed the Guidelines for the Ethical Use of Digital Data in Human Research.

Other Groups and Associations

The International Council for Science (ICSU) (Website)

Uploaded 22 Jan 2019

The International Council for Science (ICSU) is an international non-governmental organization devoted to international cooperation in the advancement of science. Its members are national scientific bodies and international scientific unions. TWAS is a Scientific Associate of ICSU.

Other Groups and Associations

Guidelines for the ethical use of digital data in human research

Uploaded 31 Dec 2018

The guidelines presented here have been developed to assist researchers who are conducting, and ethics committee members who are assessing, research involving digital data. 

Other Groups and Associations

Good laboratory practice (GLP). Guidelines for the archiving of electronic raw data in a GLP environment

Uploaded 01 Nov 2017

The aim of this document is to provide guidance on the GLP complaint archiving of electronic raw data.

Other Groups and Associations

ICGC cancer genome projects

Uploaded 31 Oct 2017

ICGC Goal: To obtain a comprehensive description of genomic, transcriptomic and epigenomic changes in 50 different tumour types and/or subtypes which are of clinical and societal importance across the globe.

Other Groups and Associations

Genetic testing, privacy and discrimination

Uploaded 31 Oct 2017

The concept of "genetic discrimination" only recently entered our vocabulary. But the problem is well documented. Indeed, the Council for Responsible Genetics was the first organization to compile documented cases of genetic discrimination, laying the intellectual groundwork for future legislation.  

Other Groups and Associations

Australian Autism Biobank study

Uploaded 31 Oct 2017

The aim of the Australian Autism Biobank is to collect detailed information on Australian children with autism and their families. By understanding how the many genes and gene combinations may result in different types of autism, we aim to learn much more about why autism occurs.

Other Groups and Associations

Genetics Home Reference "Help me understand genetics

Uploaded 31 Oct 2017

An introduction to fundamental topics related to human genetics, including illustrations and basic explanations of genetics concepts.