This resource is to complement your learning, and introduce you to other perspectives on the topics under discussion.

This whitepaper summarizes high-level findings from a nine-month study beginning with an assessment of current practices and usage for each of the primary areas identified and ending with considerations, recommended best practices and top reference citations to inform further thinking and discussion.

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The Tufts Center for the Study of Drug Development at Tufts University provides strategic information to help drug developers, regulators, and policy makers improve the quality and efficiency of pharmaceutical development, review, and utilization. Tufts CSDD, based in Boston, conducts a wide range of indepth analyses on pharmaceutical issues and hosts symposia, workshops, and public forums, and publishes Tufts CSDD Impact Reports. One such report found that 89% of all clinical trials meet enrollment goals, with site activation rates reflecting success with study startup and speed to recruit the first patients. 

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Social media has potential in clinical trials for pointing out trial issues, addressing barriers, educating, and engaging multiple groups involved in cancer clinical research. Social media is being used in clinical trials to highlight issues such as poor accrual and barriers; educate potential participants and physicians about clinical trial options; and is a potential indirect or direct method to improve accrual. We are moving from a passive "push" of information to patients to a "pull" of patients requesting information. Patients and advocates are often driving an otherwise reluctant health care system into communication. Online patient communities are creating new information repositories. Potential clinical trial participants are using the Twittersphere and other sources to learn about potential clinical trial options. We are seeing more organized patient-centric and patient-engaged forums with the potential to crowd source to improve clinical trial accrual and design. This is an evolving process that will meet many individual, institutional, and regulatory obstacles as we move forward in a changed research landscape.

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Tamar Weinberg talks about how growth and adaptation of social media networks represents an ideal opportunity to overcome one of the most challenging aspects of the clinical research industry. This medium can be a powerful recruitment tool that can be used to target specific patient demographics, drive more pre-qualified patient referrals, and reduce overall costs. 

This resource is to complement your learning, and introduce you to other perspectives on the topics under discussion.

This resource is to complement your learning, and introduce you to other perspectives on the topics under discussion.

This resource is to complement your learning, and introduce you to other perspectives on the topics under discussion.

Kristen Snipes is a project director at Rho. She has over 15 years of pharmaceutical industry experience primarily as a program manager or clinical operations lead. Here she presents seven tips that sponsors and CROs need to consider when using social and digital media to recruit and engage with clinical trial patients.  

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This web link presents a collection of interesting stats about social media sites and users.

This resource is to complement your learning, and introduce you to other perspectives on the topics under discussion.

This presentation highlights approaches that help research teams to leverage digital approaches, in particular social media, to support their clinical studies -- from education and recruitment to retention and reporting back results.

This resource is to complement your learning, and introduce you to other perspectives on the topics under discussion.

This blog discusses the growing interest in patient engagement in clinical trials. The pharma industry is responding with technological innovations and increased interactions in an effort to keep patients pleased, comfortable, and incentivized to participate.